The Untold Story Told

My untold story told and why I keep going

In The Beginning

I cannot talk about what is feels like to work with a Chronic Condition as it brings me to tears. I can only describe it in words or try to.

I started working at fourteen in a kitchen, washing dishes, cleaning tables and serving customers. Still learning, still studying and trying to earn some money for myself. I hit sixteen due to leave school. I didn’t know what to do. I then find out about an apprentice scheme to take part in. I can work, get paid and study one day a week at college. Sounds perfect. Not Knowing then it would take me on this journey. This journey of pride, sense of achievement, knowledge and above all finding myself. Discovering I can help others despite my own circumstances.

I knuckled down, studied hard, went to work whilst still working in the kitchens at the weekends. I was in the working world. Earning my own money. Paying for my own driving lessons. I can always remember my dad saying. “You have to go out and get what you want. No one else is going to do it for you” He was right and even though he is not here with me today. I can still always hear him saying those exact words. He was the person who inspired me to keep going for as long as I could. The story I haven’t told many.

At sixteen I studied in Early Years Care and Education Level Two and Three It was then the old NVQ. This took me about three years to complete. In that time I learnt a varied amount of knowledge whilst working in the childcare sector. I worked in two nurseries in the space of nine years. I then moved onto a Special needs school. Where I met the most amazing individuals. The learners all had their individual needs, their barriers and self-determination. They still carried on learning, they kept on pushing through and still were thriving. How did they do this? Then the answer came to me. They had the support from the school, from professionals, friends, staff who believed in them, me and most importantly their parents. I came to realize later on how important this would be.

This Post Has 12 Comments

  1. Avatar
    Pat haste

    Stay strong love your dad would be proud . Your family are here for you xxxx

    1. MyalgiaFibroWarrior

      Thank You Lovely. You have been a great support to me. You are never afraid to tell me how it is either.
      A big big thank you to you xxx

  2. Avatar

    What you are setting up is a wonderful thing. By sharing your story you are encouraging others to share theirs, stand up and be counted. As you are there for others so they will be ther for you. A fybrowarriors community, a support group for those dealing with invisible illnesses we will have a positively impact.. xx

    1. MyalgiaFibroWarrior

      Sanch you are a great example of a fellow warrior to. You have achieved so much regardless your condition.
      I am glad you have agreed to be part of the support network.
      Hopefully we have started something that will actually help others not just in the UK but around the world.
      Much love xxx

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    Awwwww…bless you for sharing your Dad with us. He sounds like an amazing man. May he rest in peace…and may you find peace, sweetheart. I had a terrible time too adjusting to fibro when it hit full force after a burnout when I was 37. Always had problems that were painful and weird since childhood, but everyone including myself just ignored them really, or tried to anyway. I’m 52 now and I can promise you this: you will learn to live with this. You will learn how to cope. It starts with acceptance…And not pushing yourself over your limits. Thats the golden rule. You need to set boundaries even if it goes against all you are made off and believe in…thats tough. But if you dont, you will be your own worst enemy. 12 spoons is all you get, each day. Use them wisely and you will live this life with fibro as best you can. Push, and you will only hurt yourself more. The choice is yours…yes….it is yours, nobody else has a say in this. Only you know when to say, enough for now. You will get the hang of it, I promise xxx

    1. MyalgiaFibroWarrior

      Thank you for your lovely comment. You have been a fantastic follower.
      Don’t give up on yourself either. Its never too late.
      Thank You once again.

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    Your Dad sounded an amazing guy! Im sure your family must of been a huge reason he kept going and smiling. I realise life seems to take the good souls first. Living with a chronic illness makes you so aware of what many just take for granted which in turn makes you more sensitive and kind. To start a support group is a lovely way to reach out helping others to not feel alone. Xxxx

    1. MyalgiaFibroWarrior

      Thank you Sarah. I’m glad you are part of it all also.
      It’s just not my website but it’s for everyone. Any suggestions are always welcome.
      You are a great example yourself.

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    Well done for sharing your story hun. Such a strong woman who still sees the positives in everything and you are a massive inspiration to others! What a great website promoting awareness of conditions so that others will be encouraged to share and seek support. Just fab! 🙂 xxx

  6. MyalgiaFibroWarrior

    Thank You lovely lady for your comment. My hope in the future is, that this site will be expanded to help everyone in any circumstances. Even if its just to talk to someone. Your support means so much. xxx

  7. Avatar
    Carla Phillips

    You are one strong lady, so proud of you hun x

    1. MyalgiaFibroWarrior

      Thank you lovely. You have been such a great support. Feels like I can at least put this chapter to bed and focus on the future now. Hugs xxx

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