The Invisible Becoming Visible

Friday 14th December 2018

What you are about to see may be a bit distressing but more so for me at the time. I filmed this particular moment of my flare up to bring awareness and attention of what it is really like in reality. Prior to this happening my Torticollis started to effect my neck and head. They were shaking persuasively. My muscles and face tightened. Then out of no-where the shaking traveled down to my legs. This had never happened before. It lasted for about thirty to thirty five minutes in total. The after effects were tiredness, aches, throbbing pain, stiffness and a pins and needles sensation in both of my legs. This is what others do not see. However, I have made the decision to share this with you all because I still have a whole life to live yet in front me. I do not want to be felt sorry for either. I cannot keep this a secret for that amount of time. One day it is going to happen in public but that’s okay. I’m not ashamed of this. The more people that are made aware the better. So off to the doctors I go again Monday. Lets see if they can give me any advice to what may be going on. I will keep you all updated. Thank you all for reading.

This Post Has 2 Comments

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    Hi, Amz!
    What a horrible experience…and very happy to hear you made that appointment so soon! Bear in mind that you might have a dissapointing reaction from your doc, as with most of our bizar symtoms. But, DONT LET THIS DISCOURAGE YOU! It’s still early days, as we all undergo so many strange and devestating new symtoms. Funny enough another friend on IG had the same happen last night. Her torseau went into complete and violent spasms for hours, first time too. Needless to say, she too is exhausted and in shock. It’s just too frightning to think one evening this can happen to me at anytime…and we have no clue why. But, we keep the hope! We must keep fighting for answers, and thats exactly what you are doing. We applaud you, Amz!!! You are such a WARRIOR and our lifeline. Thank you for being our rock, even though you yourself are in this up to your neck. We love and support you always. Heres hoping your appointment WILL shed some light on what happened to you…Soft Hugs & Good Luck, Miki xxx <3

    1. Avatar

      Thank you so much again for a lovely comment. My Doctor has been amazing. He was quite shocked also from what he saw. I have another appointment with him after Christmas to see how I am getting on. Will get some where in the end. Hugs to you to Hun. Much love xxx

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